Friday, April 6, 2018

Triple Clicks Banner Here:

Friday, October 23, 2015

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Tuesday, January 8, 2013

I have made changes to my latest writing about having MS and Fibro. If you wish, please review it at:

Thank you for checking it out for me - hope you like it!

Thursday, August 9, 2012

I have started writing about my MS and Fibro "journey". If you have a moment, can you please take a look and tell me what you think (I've only gotten as far as "chapter 1" for now)? Thanks a bunch for your time!

Monday, July 2, 2012

UPDATE: did my shot this weekend and "just" ate pineapple. The smoothies ARE MUCH more effective for me, fyi.

Thursday, June 28, 2012

About me

I have Multiple Sclerosis (relapsing/remitting – DX'd in 1995 but I am 99.9% certain I was born with it. I've had symptoms since I was an infant, according to my parents) and “mild” Fibromyalgia. This page (and another you can go to from here) is for discussions about MS (plus some political discussion and some totally free money-making links throughout). Thanks SO MUCH for your visit!

~~~~~~~~~~~~~~side note~~~~~~~~~~~~~~~

I apologize in advance for all of the ads here. I desperately need to find a way to make a little bit of money (sorry again). I am a user of Low Dose Naltrexone (LDN) since October of 2010. Feel free to email me if you have any questions about it. (I've had very good luck with LDN but I realize it doesn't work the same way for everyone).

Saturday, June 23, 2012


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Tuesday, June 19, 2012

  • This is kind of cool imo: The MS Society of Saskatchewan wants to publish my poem!
    Thrill Ride (by Yvonne Decelis)
    It's a slow roller-coaster
    every day
    I feel my brain peel away
    layer by layer
    piece by piece
    it's much smaller
    now than it was
    fifteen years ago
    everything is a little harder to do
    now than it was
    ten years ago
    five years ago
    this morning

Friday, June 1, 2012

Web Freebie Bucks

Come to this page if you want a way to earn money online (without spending any of yours):


Monday, May 7, 2012 has national basketball league tickets for the Miami Heat and the New York Knicks team as well as the Oklahoma City Thunder schedule.

miami heat tickets           new york knicks tickets               oklahoma city thunder tickets

Thursday, May 3, 2012

Manta badge, FinditQuick and BlabBubble

YDC Blog for discussions about MS (and other)

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Monday, January 9, 2012

Occupy Boston

Follow the graphic (BELOW) to go to the Occupy Boston (OB) web page:

I spoke to a nurse about early March of 2010 and when I complained of how lousy Avonex made me feel (I've been using Avonex since 1996 and it always gave me flu like symptoms for at least 2 to 3 days, often quite a bit longer) she recommended eating fresh (unprocessed/uncanned/unheated) pineapple... before (about an hour to ninety minutes BEFORE) I inject because it has an enzyme in it (Bromelain) that helps lessen the side effects significantly. FYI: It is a natural anti- inflammatory. She also told me it had to be fresh (but I did have one MSer tell me she used canned and felt it still helped. Then again another told me the exact opposite).

My Neuro recently told me she has been telling her patients about this and that she's been getting good feedback back (for ALL Interferons, NOT just for Avonex).

NOTE: she also emphasized drinking LOTS of water the day of and after the shot


sometimes the pineapple works fine by itself, other times it isn't as effective so I have started taking Natural Papaya & Pineapple Enzyme chewable tablets that I get at Trader Joe's ($2.49). Also - I have started making smoothies instead of eating the pineapple all by itself. The smoothies work REALLY well (I'm glad too - getting kind of tired of Pineapple). ;o)

according to my Neurologist this is something that should help with all Interferons (it works with Rebif)

not sure why, but using bananas seems to make the smoothies LESS effective. I stopped using bananas a few weeks back and that (combined with my use of LDN) seems to have really made a difference.

This is another "not sure why" one: before I inject I find it helps to let the Avonex come to room temperature. The colder it is when I inject, the faster it "knocks me out". Also - I find that warming it only makes me sleepy (from the Avonex) for a little while but, if I stay up "through" the tiredness I feel better (the next day too).
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Tuesday, January 3, 2012

added on Sunday, 5-27-2012:

added on Thursday,  4-19-2012:

added on Wednesday, 3-14.2012:

There is a one minute video of the Protest provided by the Boston Globe at:

added April 5, 2012: "CONTACT:
Kaitlin Sopoci-Belknap, National Field Organizing Director,
Mary Laan, Move to Amend Southeast Wisconsin Coordinator,

Voters in West Allis, Wisconsin Move to Amend

WEST ALLIS – Last night West Allis, Wisconsin, a conservative
Milwaukee suburb, voted overwhelmingly to reject the Supreme Court’s
2010 Citizens United v. FEC ruling. Republican Party primary voters
approved a resolution calling for an amendment to the US Constitution
to establish that corporations are not people and money is not speech
by 70%, becoming the most recent community to vote to support the Move
to Amend campaign.

“Last night’s vote clearly shows that corporate personhood is an issue
that cuts across party lines,” said Kaitlin Sopoci-Belknap, a member
of the Move to Amend coalition’s national Executive Committee. “Our
volunteers in West Allis received as much support as our campaigns in
Madison or Boulder last year. Americans from all sides of the
political spectrum are ready to get corporations out of the
Constitution and out of our political process.”

The Move to Amend coalition has already seen a great deal of success
using the municipal resolutions strategy. Los Angeles is the largest
city to date to pass a Move to Amend resolution through their city
council, and resolutions have passed in dozens of other cities
including Duluth, MN, Albany, NY, Asheville, NC, and Key West, FL.
Last month residents of Vermont approved resolutions in over 60 towns
through their town meeting process.

Move to Amend volunteers have also taken the campaign directly to the
voters of others towns. In Madison, WI, Boulder, CO, and Missoula, MT
local Move to Amend groups were able to pass resolutions through voter
initiatives last November. In all communities the resolutions passed
with 75% of the vote or more.

Communities with initiatives underway this year include Salt Lake
City, UT, and Mendocino and Lake Counties in California. Several
additional communities are expected to ask their city councils to
refer initiatives to the ballot as part of Move to Amend’s
“Resolutions Week” campaign this June. Resolutions Week is a joint
effort of many organizations to pass another round of resolutions
across the country in June.

Currently, polling indicates that almost 80% of Americans are in favor
of overturning the Citizens United Supreme Court decision, with a
majority supporting an amendment to establish that corporations are
not entitled to Constitutional rights.

Move to Amend, which has experienced exponential growth in recent
months, is a national grassroots coalition seeking to pass a
constitutional amendment that states that Constitutional rights belong
to human beings only, not to artificial legal entities such as
corporations or labor unions; and that money is not a form of speech
protected under the First Amendment.

For a list of cities that have passed resolutions or that have
campaigns in progress see:"

Added Fri, May 4 2012:

Had my final Influencing Elder Policy class at the University of Massachusetts this week. The teacher, Robin Sherman, posted this and I feel it was too easy a way of explaining why Citizens' United is NOT a stand alone problem:


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